Saturday, 21 April 2012

  • The Next Leg of the Journey - The Right Path

    So we have come to a bit of a standstill in our task to get CM1 onto the next level of his education. The issue being what is it going to be? I have written for awhile now about him taking the law boards and applying to law school but suddenly hubby is not certain that that is necessarily the right path for our son. Not because CM1 wouldn't be able to excel at law school. By all indications he should be rather good at it. No, its about the law field itself and the fact that lawyers can not find jobs, the law practice is changing and whether CM1 wants to practice law or use a law degree to branch out into another area of the world.

    So here we are sitting quietly and hubby springs this idea. Fine. I have no problem with that. We discussed what to do. I bookmarked several graduate school websites and we are going to go through them to see if  there is anything that strikes CM1's fancy. The truth be told, Forbes came out with a list of the top ten jobs for the future. You can rest assured lawyer was not one of them. There was engineering, business and healthcare (therapists). Now the reason that CM1 never pursued any of these before is simple..he hates math and can't do math beyond basic high school math. In fact he hasn't taken a math class since high school.

    CM1 had been interested in forensics in high school, but the last year of physics and pre-calculus aggravated him to no end. He actually did well in both classes but it was a struggle and very very very anxiety provoking. So when he saw that for a biology degree in college he needed physics and higher level math, that was the end of that. Now he has registered though for a forensic chemistry class for the fall and we found out that all he needs for that class is highschool level math. Nothing fancy shmancy. I hope it works out. I definitely think we need to move CM1 out of his comfort zone and let him see more of the wider world.

    So as we continue on this quest to figure out if law really is his calling, I have looked at some management programs in the area. Brilliant-computer-sis warned that alot of these programs do require higher level math so I am trying to do some research. I have looked at the course list and while there is no finance, accounting per se, we will need to see just how much math is required in the study of global marketing, urban renewal and health administration.

    We are thinking at this point to try to have him take a class in marketing or management at the college. It does not look like he is going to be getting an internship. After sending out dozens of resumes and not one call for an interview there comes a time when you need to accept the fact that nothing is going to happen for this youngman right now. He couldn't even get a job at McDonald's. Or as s supermarket checker.Those are all taken by adults. The traditional jobs that a teen or college student would be able to get during the summer does not exist around here anymore.

    So that is the plan right now. Maybe a course outside his comfort zone and let him see if there is something else that sparks his interest. He is already signed up for the LSAT and this summer I will try to get him accommodations for the GRE if graduate school is the way he wants to go. Interestingly some of the graduate programs don't even require a GRE unless you do not have several years of work experience. Now he does not have that of course. But in reality how many recent college grads really do?

    On another note, hubby did mention that law may be the way for CM1, merely because he is genetically predisposed to it. It's why people follow in their parents footsteps. Not because they can't think of anything else to do, but because they are more inclined to that profession. Perhaps that is why you have families of doctors, lawyers, accounts, businesspeople, artisans and professors, etc. This is what simply comes naturally to everyone. Who really knows right now. We could also be over-thinking the entire episode, but we want to make sure that if we set him on a path that it really is the right path for him.

    Now CM2 is another story. He has always wanted to major in computer science. He loves computers and his goal in life is to create computer games. Problem is he is not very independent in his classes and the professor is of the opinion that this is not a major for him. I kind of became annoyed with that response. I have lost count of the number of times people have told me that the boys can't do something. So I am not one to say "oh, OK" if a professional tells us the boys shouldn't....

    Of course this may be a different situation as the professor has been teaching CM2 for two semesters and he sees how CM2 functions in class and on his tests. Honestly if you cannot maintain an A or high B average in your choice of major, it is probably not the area for you. Now CM2 is not doing that well in these courses. Not certain what the issue is. We are trying to figure it out. He even has a tutor.

    Yes I know he has a math disability and so much of the computer science is math or math related but I think there has to be a way around the issue. He is registered to take another computer science language next semester and I am told that BASIC is much easier than JAVA. Honestly I have no idea what to really do. We have never told the boys they can't do something. We have always told them if you want to do XYZ and it is difficult you need to figure out the way to do it. So maybe one more semester of computer science to see how he does. Perhaps it is the professor. Perhaps it is the type of computer language. Perhaps CM2 needs to get off his butt and work harder than he is willing to.

    Problem is when I told hubby what the professor said, his initial response was that the professor may have a point. CM2 may not be cut out for this major. But on the other hand, CM2 has given us so much trouble about putting in the right amount of effort in school, not sure his issue is not effort related rather than understanding related. I suppose either way it may not bode well for what he wants to study. I just wish the boy really listened when we tried to explain this to him.

    So anyway here is where we are right now. It's a type of limbo that I really am not used to. I have always had a direction for the boys and I have always knew where to point them. The issue is making certain that in today's world CM1 studies something that is practical and realistic in graduate school. Hubby is determined to get him away from holocaust studies. Even most of his history courses are depressing, talking about subjugation and annihilation of one people over another. Hubby says he needs something positive to study and something that looks to the future. I agree. That is why urban renewal or public health or international global markets may be the way to go for him. Get him away from the sadness and into something that brings hope.

    Now CM2..he is a totally different story. What that story will be I have no idea. But what I do know is that he really cannot put two and two together and figure out that with a little more effort he would truly have an easier time at school.

    So here is my recommendation for all you parents with children starting middle school into high school: make certain in your transition plan there is a way for your child to branch out and to take courses that may not be exactly what one might think they would enjoy. Challenge them. Don't let them get comfortable with studying only what they are used to. Make sure the schools have them take classes in every area and even if they go to a technical school make sure they are exposed to the wider world. (Yes there are the across the board classes that student take in college but its not the same thing as hands on experiences.) I think this was our biggest mistake. We allowed them to get comfortable in their little spheres. Yes I know the boys are still very young and have quite a ways to go..but it would have been better if we had started this leg of the journey alot sooner. It's the aimlessness that bothers me. Not knowing what's out there too is a problem...

    Websites, books and research that is now the name of the game....we might end up where we began. But at least we would know that we looked at the wider world.


    Until next time,


    Elise




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Thursday, 19 April 2012

  • Z is for Zenith

    Zenith the highest point reached in the heavens...

    May our children find their zenith. May they know freedom, love and joy. May they be embraced for all that they can give the world and understood for all their needs. May they fulfill their true destiny....May they paint with all the colors of the wind.....




    This is the end of my journey through the alphabet and autism. Thank you for coming along on my trek.

    Until next time,



    Elise



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Wednesday, 18 April 2012

Sunday, 15 April 2012

  • The Tale of the Jewpacabra*

    Honestly I never watch South Park. Don't really think much of their "humor" is generally funny. But the other night as the family sat in front of our erstwhile television set, we happened upon the latest creation out of the minds of Trey Parker and Matt Stone. By the way, no, we have not seen the Book of Mormon either even though we live not far from Broadway.

    Anyway in this episode the South Park braintrust had the resident anti-Semite, Cartman, concoct some story about a "Jewish" themed chupacabra, so he could have all the Easter eggs to himself during the Easter egg hunt. But as usual for Cartman, his plan backfired, and he ended up tied to a stake as a sacrifice to the Jewpacabra.

    Now for those of you who do not know what a chupacabra is..it is a Mexican devil animal that eats and kills goats. It is said to have magical powers and is the spawn of Satan. Yes the chupacabra is part and parcel of the lore of cryptozoology along with the Yeti, Bigfoot and Nessie.

    What you also need to know is that along time ago, OK, in some parts of the world they still believe this, people used to think that Jews used the blood of Gentile children to bake their matzoh. I know....I kid you not..how gross and how unbelievable.Yes there are people who are that stupid in this world.  By the way, if you ever hear the term "blood libel," this antisemitic charge is where the term originates.

    Hence Cartman's creation of the Jewpacabra....

    Meanwhile this entire South Park episode revolves around how the grownups in the town are willing to sacrifice Cartman to save themselves from the Jewpacabra. And of course, Kyle, the lone Jewish student in the town rescues the semi-functional anti-Semite Cartman from his fate. Thus upon waking Cartman thinks that a miracle has occurred and converts to Judaism...no doubt until he finds out there really is no such thing as a Hanukkah bush. (Seriously there is not. Sorry to disappoint.) FYI- CM2 was really insulted that South Park let Cartman into the "Jewish club" considering he is such an antisemite.

    My entire thought during the  episode is that a blood-sucking-goat-eating-Jewish-wild-animal has nothing on my boys. Considering the amount of arguing, kvetching, complaining, yelling, name-calling and door slamming that goes on in our house, I can tell you that the Jewpacabra lives with us, and that there are two of them. They also don't suck the blood out of their parents, they just make their parents' hair gray and at times, puts the parental units on the edge of having an ulcer or two, or three. Interestingly these two boychiks of mine do have an uncanny Satanic ability to drive their parents to drink that glass of chardonnay as well. (OK, this could also simply be the teenager in them coming through, no "Jewpacabra" channeling at all....)

    On the other hand, those that think the Jewpacabra truly exists may think twice about coming to our house especially if you think that a cryptozoological animal has to have four legs and fur. These are the Jewpacabras  you should be afraid of....

    Hebrew on the poster says..this is the generation that seeks God...


    FYI the ten pound bichon is the most ferocious. Go near her food and she will rip your head off. Well that is what she does to the 70 pound labradoodle when he gets in her face. The wheaten terrier, understandably just watches them both, shakes his head, sighs and wonders why he ended up with two such batshit crazy canis lupus familiaris as siblings.


    Until next time,



    Elise

    * Jewpacabra is wholly owned, conceived and storified  by the creators of South Park. I borrow it without their permission...if they object to my use of the term, they can contact me.









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Friday, 13 April 2012

  • Y is for You

    A repost from June 10, 2009. 

    One of the most important subjects concerning your child is you. You must take care of yourself. It was the first thing the therapist said to me when my oldest was diagnosed. You will do your child no good if you are unhealthy, stressed and depressed. I guess she had noticed the state I was in. Years had gone by without an understanding of what was wrong. He had had so much trouble in nursery school, the pediatrician had no idea what she was dealing with and the public school system where I was had bullied me into removing him from the kindergarten class. I couldn’t find a private school that would take him.(15 years ago the rights of disabled children weren’t so well known and I had no idea what he was entitled to.  Today it is a different story. Not only do I know the law, but there are the websites, chatrooms, and info boards to turn to. Thank God for the internet) I was a wreck.  Part of my problem did get solved because we moved to a school system that followed the law without giving the parents a hard time. (Yes, the debt we incurred was enormous. But at times, life is what it is and anyone who tells you to save, save , save never had a special needs child) .
    Here is a list of items you should always be aware of for yourself:
    1. EXERCISE. This reduces stress. If this can help then maybe you won’t have to do the anti-depressant route. I can’t tell you how many moms I know live on SSRIs

    2. NUTRITION. This is not just for your child. You need a balanced diet to remain healthy. Eating the left over grilled cheese will not give you the strength to work through problems and confront the issues you face.

    3. DOCTOR VISITS. Make sure you see your doctor. Go to the gynecologist, dentist, family doctor for regular check-ups. If you do not catch issues before they flare up you will be of no use to your child. Remember, the teeth are the root of your body. Tooth decay has been linked to everything from headaches, to heart disease. Heart disease is the number one killer of women.

    4. HOBBY. Have a hobby. Something that makes you happy. I had been crocheting, then took up needlepoint and now I knit. The crocheting and knitting were very productive. I make blankets for Project Linus www.projectlinus.com. This is a nationwide organization which gives out blankets (crochet, knit, quilt, etc) to children in hospitals, foster care or to TAPS  www.TAPS.org  which is a support organization for children whose US military parent has died in war. I can’t tell you how gratifying it is when I get the newsletters telling about the thousands of blankets given to families for their children. It also has the added benefit of keeping me grounded and recognizing what is really important.

    5. GO OUT. Go out with your spouse or friends. I see friends for lunch. I meet my sister for a Saturday without the family and my husband and I have Home Depot dates. It is important to do something fun without the children. It is also important for your marriage. I know marriages suffer terribly when a child has this disability. I also know that I am one of the lucky ones with a husband who could eventually deal with his children’s problems and understood that it is about them and not him. But we also do not go out to dinner, we rarely see a movie, we spend time together running errands on the weekend. It is the time that counts, not what you do.
              I also never made too much out of occasions. He has the type of job that he basically works 24/7 and would work 27/8 if that was how the world kept time. Make sure that your emphasis is on what is really important. How does he treat you, does he just hand over his paycheck because you pay the bills and take care of the children, is he there for the children- spending what little time he has with them helping them with issues,  does he understand what he needs to do for them and most of all does he make sure that his side of the family does what the child needs and gives them no choice in the matter. Being home for an anniversary instead of the office is not really what is important.

    6. PRIORITIES. Keep your priorities straight. Find support groups either in your town, school or county. Join a religious center for support. Sometimes they have support groups for parents of special needs children or there may just be someone to talk to. Check into the PTA in your school district, they may have a special needs network. Talking to others will help you remember what is truely important during some of those times of sadness.

    7. VOLUNTEER. Help someone else. ( Project Linus, helping with the PTA, going to the local hospital, united way, junior league, religious charities, etc) This will also give you a good perspective on others realities. It never hurts to get a swift kick in the butt when you are feeling sorry for yourself.

    8. ASK FOR HELP. It is not a sign of being an inadequate parent to ask for help. Ask a relative, friend, husband to watch the children for awhile while you decompress. Ask the school for ideas and get a doctors idea for help and support. Go to the county or social security to see if you qualify for services. Find out what is available in your area for special needs children  either from the county health office or the local autism chapter.

    9. WORK. Most women have to work, especially with the costs associated with special needs children. You know what. It is OK. It is also OK to enjoy your work. It is also OK to be glad to be at work. It is also OK to acknowledge that it is not easy to organize everything your child needs while you are at the office. It is OK to say this is hard. It is OK to acknowledge that we have been fed a load of bunk about having it all at the same time. No-way no-how especially with special children. Acknowledge that you are doing your best, that this having it all is just nonsense and that you are more than adequate, you are great!

    Lastly and most important: it is OK to be scared out of your mind.  Acknowledge it, embrace it, defeat it! Yes you can! 
    You are important. Don’t forget about your self.

    Related Post:



    Until next time,


    Elise



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